Wednesday, May 30, 2012

Day 2 in Houston

I just wrote two paragraphs and I don't know where thery went????

We spent most of today waiting....of the 7 hours we were gone from the hotel, we spent maybe 1 hour with the doctors we were suppose to see.  I realize that this is all a part of the process of getting well, but when it falls in the middle of my lunch time...I get a little distracted...

Actually, now that I'm fed (supper) and back in front of a TV...with Roy next to me asleep, the day wasn't as bad as I first thought.  You got to look at the positive side of things...we are one step closer to being over this cancer business.  I know that by next year at this time we will be glad we are here.  It still "bugs" me that he is just a number.  They ask for his medical number not his name.  Isn't it great to know that God knows our names even if M.D. Anderson doesn't???

Tomorrow is the endoscopy and then we get to go home.  He has an appointment next Tuesday, so we will be back.  Maybe at that time we will know when the 5 weeks will start.

God is in control and is holding our hand.

Linda

Tuesday, May 29, 2012

Houston....we're still here

I really expected to be writing from my own home tonight but the doctors here in Houston had a different thought..

We met with the oncologist today.  She wanted another endoscope to determine better the location of the mass.  Ofcourse, we said sure...we'll stay for another 2 days.  I might have to go shopping since I really didn't expect to stay and didn't bring enough clothes...lesson learned...be prepared for more days each visit.  So, we will meet with the anethesilogist tomorrow and have a procedure on Thursday.  Then we will come home and once she (the oncologist) reads the report she will tell us when to come back for the 5 weeks of chemo/radiation

.  We decided that we were a day late and a dollar short.  If we had come up with the idea of shuttles we would be rich.  Each hotel has a free shuttle to the hospitals.  There are more shuttles in this area of Houston than I have ever seen anywhere.  So, wished we had thought of it..ofcourse, we would have had to have lived in the area and, no offense to anyone who lives down here, it's hot and humid.

M.D. Anderson is amazing.  Not that I really like the place.  We went to have blood work done today and when we walked into the waiting room there were about 30 people waiting. My first thought was we were going to be there all day.  But they took about 10 people at a time and we were in and out within 20 minutes.  There is still a feeling of being just another number...no one seems too concern about the individual.  Maybe I'm just wishing we were at home instead of sitting in a hotel.

There was a man sitting down from me today waiting to get his blood work.  He was talking about how God had worked through his cancer and that he wasn't even suppose to be alive at this point in time.  I just sat and listened and appreciated all that he said.  I know there is a plan in our lives and this is just part of the journey that God has given us to walk.

So, hopefully we will get to go home Thursday and stay home for a while.  Our prayer is that the chemotherapy that he has already done has shrunk this mass which will make surgery a little easier. Nothing is going to keep us from having surgery but whatever makes it easier would be a good thing.

God is in control and holding our hand.

Linda

Thursday, May 24, 2012

Houston...here we come!

Well, the decision has been made that we are headed to Houston to finish the journey we started 5 weeks ago.

Tuesday Roy got a phone call that M.D.Anderson had accepted his case.  At that point he made an appointment with the oncologist here to get his thoughts on traveling to Houston to do all that has to be done.  Dr. Davis (who we really have appreciated and liked) understood completely and was willing to do whatever needed to be done from this end.  Stacy went with Roy to the appointment so that there would be a child involved to beable to relay everything that was said to the other siblings.  For some reason I don't think they trust Roy or I to get things straight...go figure???  Anyway, it is a relief to know which direction we are headed, I guess....I have had a roller coast of emotions...prayerfully this decision will calm my fears.

Today Roy got a phone call that he will have an appointment with the Anderson oncologist on Tuesday.  Sure messed up our memorial day plans...wonder if they know we have a life???  Ok, no thoughts on that from anyone reading this.  We will go down on Monday, see the doctor and hopefully get to come back home.  We are wondering if they are going to want us to stay the 5-7 days for their tests that they do.  Roy forgot to ask...where's a kid when you need them???  So, we aren't sure at this point how long we will be there.  It will give us a chance to look around at different options of places to stay during the 5 weeks that we have to be there for the chemo/radiation.  Sherri has already done some checking for us so we are confident that we will find some place to call "home" for awhile.

It's amazing how God can work in our lives if we are willing to let Him.  I did have a passing "message" the other day...I don't even remember what I was doing but I distinctly heard "it's going to be ok".  Now granted I wasn't told exactly what was going to be ok but something down the road is going to be good.  That is a promise I believe in.  We also have a nest of blue birds..not blue jays...Roy says its the first time we have seen blue birds, other than just a couple years ago.  We believe they are here for a purpose.  It is a family of 4 eggs and mom and dad.  The dad watches from the fence...kinda like he has been given the job to watch over not only his eggs but us too.

Please pray that what the oncologist tells us will be positive and we will have the peace to keep traveling the road we're on.

God is in control and holding our hands.

Sunday, May 20, 2012

Not so good a week-end

I think we are still dealing with the information that we got from M.D. Anderson.  So I haven't felt that our week-end was a successful one as far as our attitude has been. 

The fact that Roy got sick at Kassidy's softball game might have a little to do with it.  He made the mistake of mowing the backyard around noon on Saturday.  I had gone to a funeral of a ACU classmate of mine or maybe I would have strongly suggested that he not do the mowing when it was 90 degrees outside..ya think????  Anyway, we had to leave the ballgame and get out of the heat.  He didn't feel good the rest of the day.  And, even today we had to leave services a little early.  He is feeling much better right now.  I'm sure a lot of it is the effects of the chemo is catching up with him.  Actually, we feel very blessed that we are almost a month into chemo and just now dealing with side effects.

And, we forgot Shay's baccalaureate services tonight..bummer.  I did go to two of Kassidy's softball games this afternoon but was very disappointed that we forgot Shay's (Sherri did say it was kinda boring).

We still solict prayers for the decision we will need to make in about another month.  I just pray that there will be an obvious choice and it will be taken out of our hands to make the decision.

God is in control and is holding our hand.

Linda

Friday, May 18, 2012

Houston...we have a problem!

I had planned to come home last night after we came back from Houston and let everyone know, who's interested, what news we received.  I had to sleep on it before I could let you guys read what we learned.  First of all, and most importantly, we know that God is in control and whatever decision we make will be because we feel we've followed His will.

M.D. Anderson is overwhelming.  There are people everywhere.  I felt as if we had walked into a convention.  People at different desks getting information, people waiting on the elevators, just lot's of people.  But when we saw the surgeon I also felt we were the only ones he cared about at the time.  He was very personable and spent over an hour with us.

Reality is what M.D. Anderson would do for Roy's type cancer is different than the plan we had orginally thought would work for us.  So, now we have to make a decision which way we want to go.  He would finish his chemotherapy here in Fort Worth.  As the surgeon said "Chemo is chemo" no matter where you receive it.  but, this is where it gets different.  In Houston, they would do another round of chemo with radiation before they do surgery.  We would be required to be in Houston for 5 weeks as Roy would get the radiation part every day for those 5 weeks....not exactly how we thought the end of the summer would be spent.  Surgery is still part of the plan but it would be much later...in the middle of the fall or later possibly.

This really took us by surprise, I guess we just thought the prodical (is that the way you spell it?) would be the same and what we were deciding on would be which surgeon to use.  So, there's got to be a lot more prayer in making a possibly new decision.  We are seeing the surgeon here in the middle of June.  His chemo isn't over until the end of June.  So there is a lot of time to pray for our decision.  Obviously, we want the best results.

What are shattered our confidence was being told that this cancer was not caught in the early stages.  Not to say it is the worse case scenerio but it isn't the best we had thought it was.  But, it is what it is and we have all the confidence that we'll come out on the other side being able to support any one else who has to walk this road.

God is in conrol and holding our hand. 

Linda

Tuesday, May 15, 2012

Just a little nervous...

Hadn't really planned to write anything until we came back from Houston...hopefully Thursday night, maybe sometime on Friday.  But, decided to share...

I am a little nervous about this appointment.  We have had so many positive things told to us about how Roy can do through chemo and then surgery.  If this surgeon doesn't agree with the surgeon here or tells us something different, I'm going to not be a happy camper.  Just let me live in my state of "God's in control and everything is going to be good."  I really believe that...until the doubts come...then I have to turn it back over to the Lord...

Roy umpired again tonight.  He is losing more of his hair.  Caleb is spending the night with us and was taking a shower in our shower when he commented on the amount of hair that was in the drain.  I hadn't noticed it since Roy took his shower after mine.  I asked Caleb if he wanted to clean it out..."yewww", was his answer.  Thought grandkids were suppose to step up and help their grandparents when they got old..some help he is!

Tomorrow is the first time Roy will go back for the 4-5 hour chemo session.  They will put in the other 2 drugs that take longer to administer.  He will also have his fanny pack refilled.  Prayfully, he will come home feeling well enough to make this trip.  We will go to Temple (as I said on Facebook) and get to be with the Temple grandkids...that is such a blessing to me.

God is in control and holding our hand.

Linda

Sunday, May 13, 2012

6 Hairs Gone!!

I have almost become obsessed with the idea that Roy is going to lose his hair.  He still has a head full of hair but I keep looking for a bald spot somewhere on his head.

This morning as he was getting dressed he commented on the fact there were a few hairs in the sink.  I immediately went to check them out...I counted 6..that's all...just 6.  I came to the conclusion that if that's how many he loses at one time I may need to find a new obsession.  We are told God knows the number of hairs on our head...wish he'd give me an idea of how many Roy's got left.

You must understand, he is not at all concerned with his hair loss...in fact, he's talking about a ball cap with dreadlocks...so please pray that when we are faced with the consequences that we are so blase about now that we will be able to handle them.

We leave for Houston on Wednesday.  So we are seriously praying for positive results.  Our prayer is the 2nd opinion that we are seeking will be exactly what we've been told by the doctor here.  We aren't prolonging life...we are curing cancer.

God is in control and He is holding our hand.

Linda

BTW...my Mother's Day was good...thanks to all the grandkids in the area and the moms and dads who shared the day with me.












































































Thursday, May 10, 2012

The Battle Belongs to the Lord

I meant to share this last night, but felt I had gotten a little long winded.

We have a very good friend who had the opportunity to travel to the Holy Lands recently.  One of the places she got to visit was the valley where David met Goliath.  The story is found in I Samuel 17 how David picked up 5 smooth stones to slay the giant Goliath.  Our friend brought back stones from that valley. She knew there would be people who she would come in contact with that needed a stone to help them on their journey, whatever it was.  This was several weeks before Roy's diagnosis but Pam thought of us when she heard Roy's diagnosis. It is a reminder of the story of David and Goliath.  So, we have one of the stones that Roy keeps in his pocket to use as an anchor and reminder that the battle belongs to the Lord.

Ofcourse, Roy being Roy did ask where the blood was????  I told him I felt it was probably one of the other 4 stones that David picked up and just dropped out of his bag after he slew Goliath....don't you agree???

God is in control and holding our hand.

Linda

Wednesday, May 9, 2012

Houston..you're makin' us crazy!!!

Today has been a whirl wind of emotions....phone calls...change of plans...but then not really..back to the orginal plan...oh no, that won't work...oh yeah, it will.

We had gotten a letter yesterday from M.D. Anderson giving us the details for the appointment we had asked to have with them.  It was going to be a whole lot more than what we were expecting.  They had planned to do all the tests that have already been done..again.  We were told to expect to spend 5-7 business days there.  And, we were to be there Thursday the 17th.  So, we're trying to figure out if we are there Thursday/Friday...what do we do over the week-end?  Do we come home then go back for Monday through...whatever??  Shana and Caleb plan to go with us...back and forth???  Good grief!  This is too complicated for our (maybe I should say..my) feeble mind.

So, deciding to "let it go" for the evening, I went to my prayer group for dinner, conversation and a lot of prayer!  I asked that we pray that things wouldn't be as nearly complicated as they seemed to be yesterday...I love this group...some I went to college with and the rest just took me into the group when we moved here 13 years ago.  We have prayed eachother through divorces, deaths, marriages, babies,  sickness, alzheimers...just about anything that life sends our way.  We haven't always gotten the answers that we wanted but we have always gotten answers.  And, we boldly ask.  When you have 16 ladies petitioning the Lord for results I think He answers those prayers.

Bottom line...the prayer was answered.  We go next Thursday to meet with a surgeon.  This will give us the 2nd opinion that everyone seems to think is a wise idea.  And, we don't have to stay 5-7 "business" days and Roy does not have to have all the tests done again.  It did take most of the day to get all this accomplished...He (the Lord) never said it would be easy...He just said He'd never give us more than we could handle, right?

The next few weeks are really full.  We will get to see the Temple grandkids on the way to Houston..we will spend the night with them.  The following week Shay, the oldest grand daughter graduates from high school.  We are so proud of Shay and the young lady she has become.

On top of all of this, Roy is still doing great!  He had his fanny pack reloaded today.  Still no nausea or fatigue and as far as we know his white blood count is still in a good range.  Shana thinks he's losing some of his hair but she also called the day after he started chemo and asked if there were hair on his pillow...not yet, Shana....

God is in control and is holding our hand.

Linda

Sunday, May 6, 2012

Keepin' the faith

Let me begin by saying we are so thankful to the Lord for the answered prayers for Roy's health.  We are amazed how well he feels. 

That being said, writing about him feeling good is not what I expected whenever I made the decision to keep everyone who was interested posted about our "new normal".  The fact that I had 390 text messages in about a 48 hour period of time initially was really what started this process.  Now, I don't have anything to say...which is good.  I told a friend at church this morning, I really have nothing to write and at the same time I don't want to have anything to write..that would mean something not so good might be happening!

We had a great week-end, doing exactly what we would normally do.  Had dinner with some really special friends, the Jameson's, on Friday night.  They live in the T&P  Towers in downtown Fort Worth on the 12th floor.  What a view when the storm started coming through although it ended up fizzling out.  Roy worked on Friday and Saturday, he came home tired but that would be normal after working all day.  I did the ballgame bit and just hung out.  Church on Sunday, which always lifts our spirits.

We are waiting on a call from M.D. Anderson to have an appointment for a 2nd opinion about the type of surgery he will be facing at the end of the summer.  We are praying that the next phase of chemo won't have any more effects on him as this first 10 days have had.  We are still expecting him to lose his hair, probably in the next 2 weeks.

So, if you are willing to pray for us, please pray that the next 7 weeks (which is about how much time he has left with his chemo) will go according to God's plan and we will praise Him in all that He does for us.  He really is in control and we know that whatever happens will be to His glory....but maybe not any mouth sores please Lord????

God is in control and holding our hands.

Linda

Awesome to be at church this morning and see Caleg (the 5 yr. old grandson) in a video..he looked so cute!  And then have the minister mention Shay (the oldest grand daughter) in a good way from the pulpit!  You always want it to be positive when the minister calls you out...right?

Wednesday, May 2, 2012

Fill 'er Up and Praise the Lord!!!

We have had such a blessed day today

Roy had an appointment with the oncologist today to refill his fanny pack with the chemo that is a continuous drip.  What was ironic about it was until it beeped to say it was out of the chemical we didn't know what would happen if he ran out.  Well, it ran out just as we walked into the exam room.  Now that's what I call timing.

After visiting with the oncologist and explaining to him what all we had done over the week-end, including Roy working 7 hours Monday and going to Waco for Shay's ball game last night, he was amazed.  He asked about fatigue and nausea and we explained that there hasn't been any, he then told us if Roy hadn't had those symptoms he wouldn't expect him to have them moving forward!  Praise the Lord!  He is mighty and has answered our prayers.

Now, we know that we will have other "trials" to go through but we are taking it one celebration at a time...and we are celebrating.  Our next prayer is the low white blood cell count that comes with chemo will not cause anymore complications.  He can expect the mouth sores, etc...won't go into anymore details but God will see us through whatever else that comes our way.

I think it is so amazing that my faith is never as strong during the prayer time as it is after my prayer is answered.  I also  include the prayer that Roy wouldn't face cancer when God answered that prayer with cancer then I was fine because I knew the answer.  Now, I will pray and know there will be an answer and how ever He answers our prayers we accept it and will keep on keeping on!

Hope this all makes sense....I'm not sleeping so well....so if I don't make sense...I apologise...

God is in control and He is holding our hand.

Linda